kaixin.sosblog.com - Blog Global Blog : Last posts

19 Jun 2009

Please note that we have moved to http://kaixindevelopment.blogspot.com/. Kindly point to this link for the official development of Loke Kai Xin's liver transplant and not any where else. Thank you.

For those of you who have encountered error whilst transfering using Maybank2u, kindly refer here.

Admin · 441 views · 13 comments

If RM5 can make a difference...

15 Jun 2009

Would you do that?

Donate an amount of 5 Ringgit, approximately USD1.38

(or any amount that you are convenient with) to the

following account and let us make a difference to the life

of Kai Xin.

Name: Loke Kai Xin 

Maybank Berhad A/C No.: 1-14013-213313

Note: If you use maybank2u or ATM, you'll see Lee Huey Jing stated for confirmation

Come back to this blog once in a while to know the latest

update to see how much we have raised for the child!

Kaixin's SOS blog: kaixin.sosblog.com

Admin · 764 views · 20 comments
Categories: How You Can Help

Thank you letter from Eric, the father

15 Jun 2009

From: ericloke
CC: hueyjing
Subject: Thank you for all the well wishes and update on Kai Xin
Date: Wed, 10 Jun 2009 09:37:14 +0800

To all dearest friends, colleagues, and friends’ friends

First of all, I would like to say thank you in a million for the kindness help out and support on us (money, lucky star, lucky rice, prays, well wishes and etc). At here, I would like to make an updates to you all on how is Kai Xin and also the trip to Singapore.

We are safe and backed to Malaysia from Singapore after several assessments were carried out included recipient and donor. For Kai Xin, she went through all the assessments; her status for now is still ok and if she don’t carry out the liver transplant operation, surely will lead to the liver failure.

As usual, a lot of relatives, colleagues, friends asked me when is the operation is going to carry out, is the transplant operation date being fixed and etc. However, myself and even the liver transplant team couldn’t given me a tentative date for the operation because her weight is not up to the requirement 8.0 kg (at least 7.6 kg and above, they will start the workout and most probably arrange the date for us). It is because the main factors for the transplant is not only timing, it is also depend on the patient’s requirement and health condition. Thus, we only can do for now is pushing up her weight and maintain her healthy level at the tip-top condition.

For you all information, as spoken to the liver transplant team, to workout a liver transplant is not easy as compare to other operation. They required a lot of assessments to be carried out for both recipient and donor. When everything (patient’s weight, health condition for patient and donor, mentality readiness, and so on) is ready for the patient and donor, they will quickly arrange the operation in the soonest time. Surely, they wouldn’t take the risk to go for the operation if the patient and even the donor are not fit. During the assessment week, we also met up with social worker and psychiatrist.

On donor side, since father is not a suitable person to be the donor, now they work out the assessment on mother. The reason is father’s liver artery is too short and narrow if the surgeon cut out the left lobe of the liver. Although there is no risk for father, but it will lead for future complication and the result will not be good for Kai Xin. When I heard this outcome, I feel so sad and really cried out after walked out from surgeon’s clinical room.

I think the GOD must has more important tasks for father to carry out. On the day, it is a very difficult night (Thursday) for me and Huey Jing to fall in sleep, we feel worry, tension, fear and etc. Because right after the surgeon turned down me as the donor, immediate we arranged Huey Jing to carry out the most important test (CT Scan) on Friday morning. Is very lucky and I think mostly there are a lot of wishes, prayers from you all to support us, Huey Jing successfully went through the vital scan and her liver size and artery structure is very complete and straight forward (our legs were shaking when the pediatric surgeon Prof. Prabha [liver transplant main surgeon] opened up the hospital system to go through the scanned result in front of us, wow at that moment both of us can only pray, pray and pray). So at this stage, Huey Jing is a suitable donor prior the rest of the assessments.

So the next course of action in summary is: -

Kai Xin has to gain her weight up to 8 Kg, liver transplant team will arrange the day for operation when her weight up to 7.6 Kg (Current weight, 7.2 kg inclusive of water in tummy)
Maintain Kai Xin’s healthy level as good as possible
Mother can carry out the rest of the assessments anytime
Kai Xin will stay in UM for longer period in order to gain up her weight. As recommended by doctor, they will use a feeding pump to feed her gradually in the night time (less milk volume and increase feeding frequency).

Lastly, we couldn’t believe the response is so well after we mailed out our story to our closed group friends, colleagues, relatives and other friends which we don’t know them as well. You all are always in our heart because you all giving us the best supports from money (as of 9 June 09, RM 38,435.00), well wishes, lucky stars, lucky rice, and also prayers from everywhere such as churches, temples, mosques and etc.

We will stay strong and continue the long journey with our Little Kai Xin.

Eric, Huey Jing and Little Kai Xin

Admin · 502 views · 14 comments

患先天性膽管阻塞‧小凱欣需50萬救命

15 Jun 2009

（雪蘭莪‧八打靈再也）她在出世后的110天，便要承受膽被切除的痛苦；7個月大了，她不能像其他嬰孩般學翻身、爬行，因為她的肝臟開始出現硬化現象，腹部腫脹積水，腰圍更達22吋。

小凱欣患有先天性膽管阻塞，全身發黃，2月動手術把膽切除，現在更面臨肝臟漸漸硬化的痛苦。

小生命正與時間賽跑

主診醫生在報告中指出，以他們的經驗來說，患上這種病的孩子若沒有及時進行肝臟移植手術，很可能在15月大時因為肝硬化而死亡。

這意味，小凱欣還有大約7個月的時間，她的小生命正在跟時間賽跑，她急需社會人士慷慨解囊，協助她在短時間內籌獲50萬令吉，前往新加坡進行肝臟移植手術，以救她一命，重獲正常的成長生活。

李彗菁：情況良好才可動手術

根據醫生，小凱欣的體重要上升到8公斤（不包括腹部積水），情況良好才能前往鄰國進行肝臟移植手術，可是，她現在的體重只有7.2公斤左右（包括積水）。

媽媽李彗菁說：“我們現在只好依照醫生的指示，讓小凱欣每隔3小時就喝奶一次，包括晚上，以少量多餐方式令她體重增加，同時不定期注射蛋白質協助她排出腹部的積水。”

小凱欣的腹部開始腫脹後，就顯得沒有胃口，牛奶也只是喝少許，而積水也導致其呼吸急促，因而也變得脾氣比較暴躁，容易哭鬧。

羅禮彬：罕見病症萬中僅一人患上

羅禮彬指出，孩子的先天性膽管阻塞病症是“萬中選一”，每1萬名孩子中才有1人患上，而且迄今無法確定病因。

“孩子很乖巧聽話，只是比較容易疲倦，全身發黃，雙手滿布針管擦過的痕跡。哭鬧時，其實我們也不曉得到底她是不舒服或是覺得疼痛。”

来源: 星洲日报（http://mykampung.sinchew.com.my/node/67484）

Admin · 243 views · 14 comments

She needs your help

15 Jun 2009

Loke Kai Xin was diagnosed with Biliary Atresia when she was three months old and a Kasai procedure (hepatoportoenterostomy) was done way back in February 2009. Unfortunately, the procedure did not cure her condition and she was advised to go for a liver transplant as her last and only option.

Due to under weight, she was advised by UM Specialist Centre (UMSC), Malaysia to seek medical help from Singapore. After the first pre-assessment at National University Hospital of Singapore (NUH), both parents were found to be suitable candidate donors for Kai Xin. Both parents were in NUH on 1st of June 2009 for the second pre-assessment to confirm and determine their suitability to be the donors.

The total cost including post-operations and follow up is expected to be around RM500K which is equivalent to 200K Singapore Dollars (pre-assessment, liver transplant, post operations, follow ups & etc) or more due to her age.

This amount is just too expensive for them to bear in full; therefore they are appealing for your help. They have also contacted News Strait Times (NST) but NST has a condition before publishing their plight, that is to get the confirmed donor information and operation date - which Eric (the father) could only provide after the second pre-assessment.

A fund has been set-up for Kai Xin with following bank account details. For those who are keen, kindly deposit your donations (cash or cheque) in favour of:

Name: Loke Kai Xin 

Maybank Berhad A/C No.: 1-14013-213313

Note: If you use maybank2u or ATM, you'll see Lee Huey Jing stated there for confirmation